Testimonial

How long have you been living with diabetes?

I was diagnosed with type 1 diabetes 3 years ago, at age 40.

How were you diagnosed?

I was diagnosed after I had my second child. My sugar level was controlled by medicine and strict diet for about a year and a half. I started to increase carb intake slightly as I was exhausted with restricting food so much. In the meantime, my work was really intense so when I started to feel unwell I put it down to my stress and exhaustion from raising two young children.

Did your diagnosis come as a surprise to you?

Yes and no. I was surprised that it was actually type 1 diabetes and not type 2. On the other hand, I felt a sense of relief because I finally knew the reason why I was feeling unwell.

How did your diagnosis affect your family or loved ones?

They were sad and worried, especially my husband and mother. Bless my husband, he felt unfair eating some desert or seeing me injecting needles multiple times in a day. My mother is really worried about complications of diabetes.

What are the most important things that have supported your diabetes care?

Keeping my mental health a priority. Dealing with type 1 diabetes is a life-long marathon that doesn't give you a break, and for me it's important to be able to thrive and not just manage my condition. I have to keep running that marathon. It can be exhausting, lonely, and feel unfair from time to time, but I have been able to manage control as well as I know how. It's because I look after my mind as well as my diabetes. Support and understanding from family and friends are important too.

What has living with diabetes taught you the most?

To take one step at a time.
To not thrive for perfection but enjoy the journey no matter the outcomes.
To be kind to myself
To listen to my body
Grief
I can lead my life, including my diabetes
AND
Healthy eating habits and life style

What has been your lowest point with diabetes?

Just before diagnosis I was exhausted, sad, and blaming myself having carbs (even though it was only small amounts), because I thought I had type 2 diabetes. I thought the reason why I was feeling ill was because I was eating too many carbs. My self talk to myself was not great at that time.

Have you ever experienced issues accessing diabetes medicines, supplies and care?

Yes, some. Fortunately, a lot of things are accessible in Australia. CGM was expensive but now the government subsidies it. I'm really grateful for that. Pumps are still quite expensive and it would be wonderful if they become more accessible too.

What would you like to see change in diabetes over the next 100 years?

A cure would be great but prevention would also be good.

What do you think needs to change to improve the lives of people living with diabetes in your country?

Easier access to ALL treatment options, like pumps.

What does the centenary of insulin mean to you?

I can't be thankful enough and feel extremely grateful.